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The Ten Summits Challenge 2020 Memorial Hike was postponed due to the devastating impact the 2019-2020 bushfire had on the Corryong and Upper Murray Community. The Ten Summits Challenge 2022 Memorial Hike has also been postponed again. But we've come up with a Plan B!
JEWELS ‘22 CHALLENGE
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A virtual step challenge for the month of February to raise awareness for MJD and people with disabilities, as well as raise funds for research into MJD.
Machado-Joseph Disease (MJD) is an inherited gene defect and is a progressive disease meaning symptoms get worse over time. MJD causes damage to part of the brain called the cerebellum and the brainstem. This damage initially causes muscular weakness and progresses over time to a total lack of voluntary control and very significant permanent physical disability. One of MJD's main symptoms is ataxia. Ataxia is a general term meaning lack of muscle control or coordination. MJD is characterised by a slow progressive clumsiness in the arms and legs, a staggering lurching gait that can be mistaken for drunkenness, difficulty with speech and swallowing, impaired eye movements and lower limb spasticity. One progresses to being wheelchair bound, unable to do the simple activities of daily living and needing full time care. Life expectancy ranges from the mid-30s for those with the most severe forms of early onset MJD to a nearly normal life expectancy for those with mild, late onset forms. The cause of death for those who die early from the disease is often aspiration pneumonia. There is no cure for MJD! (See the video for Naomi’s story of MJD and how it affects her life) HOW TO REGISTER: Download the app Big Team Challenge and type “tensummitschallenge” on the first page then enter your details. Or Go to tensummitschallenge.bigteamchallenge.com on a desktop computer. Follow the instruction below to invite your team: Once on the dashboard, go to “My Team” and follow the instructions to create a new team. Send out the invites to your team members (make sure they register using the email address you send the invite to). WHAT IF I DON’T HAVE A TEAM? If you can’t find 4 other people who want to participate. Check the big team challenge page and see if there is a team open for anyone to join. If not then create a team and select “allow anyone to join” so others can join your team. MORE HELP You can find lots of help about Big Team Challenge by reading their help articles here: https://help. bigteamchallenge.com/en/collections/2662505-using-big-team-challenge Or send the Ten Summits Challenge a message on Facebook or Instagram. Alternatively email tensummitschallenge@hotmail.com TEAM DONATION PAGE The team leader will receive an email for “Chuffed”. You can edit your teams profile to share on your socials to help create awareness and raise funds. |
OUR GOAL
Our main goal is to create a community to create awareness for MJD and people with disabilities. Our second goal is to raise funds for the MJD Foundation Australia for research into a cure for Machado-Joseph Disease. WHAT IS THE SIGNIFICANCE OF THE NUMBER 22? Julie’s birthday was on the 22nd of February. As the year is 2022, Julie’s birthday would be on the 22/02/22. This is also the day we had planned on finishing the Ten Summits Challenge hike. To keep with the theme of 22 we decided to call this Jewels ‘22 Challenge and set our goal to raise $22,000 for the MJD Foundation. |
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Our Story, Our Reality
This video was made for the TSC 2018 tocreating awareness for people with disabilities and their families. Often people don't recognise what these people and their families go through, which is understandable as they have not had to deal with anything like this. This is part of my family's story. |